Our mission is to ensure every patient, caregiver, and member of the intestinal disease community feels well-educated and supported throughout their journey with intestinal failure, intestinal rehabilitation, and intestinal and multivisceral transplantation.
We asked our community members:
How do you handle family members who do not understand your illness over the holiday season?
If you are the caregiver how do you help your loved one handle these situations?
Do you have a question for our community?
We asked this question to one of our Medical Advisory Board Members Dr. Jafri, from Henry Ford Heath. He is a specialist in Gastroenterology, Transplant Hepatology.
"Patients would benefit from asking what alert signs and symptoms to watch for. For instance dizziness, reduced urine output, fever, leg swelling, headaches and bloating are all signs the healthcare team should hear about to adjust management. Additionally patients might ask about the full range of medical and surgical options available. That way if present options are not enough there is a realistic next step in mind."
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For Pediatric patients and their caregivers.
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Our Medical Advisory Board has 19 members from 10 intestinal rehabilitation and transplantation centers across the nation.
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"Transplant Unwrapped and educational programs are a vital resource to the community for intestine transplant and short bowel syndrome. It is so important that patients have educational resources and ways of networking with others and be able to gain a greater understanding of their disease process, a greater understanding of the expectation of what transplant would bring, and a greater resource and ability to reach the larger community around them." ~Dr. Syed-Mohammed Jafri, Henry Ford Health Systems~