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Intestinal Rehabilitation and Transplantation Centers

Section 1: Choosing an Intestinal Rehabilitation and Transplant Center

What are parameters to consider when choosing an intestinal rehabilitation and transplantation center?


When choosing an intestinal rehabilitaiton and transplantation team and center there are a number of parameters to consider, including:

  • Center specializations and expertise.

  • Location, distance from home, and relocation costs.

  • Individual center requirements for patient proximity to center while on the waitlist and after transplant surgery (if pursuing transplant).

  • Caregiver options and center requirements for caregiver support.

  • Insurance coverage and network restraints.

  • Transplant survival rates and graft outcomes.

  • Outcomes of intestinal rehabilitation procedures and patient's ability to wean from TPN.

  • Number of transplants and intestinal rehabilitation procedures the center performs each year.

In addition, meeting the team in person and considering team chemistry and trust is also important to be considered. You will want to trust the selected team explicitly when undergoing the rigorous process of evaluation, waitlisting, transplantation, and post-transplant care.

Oftentimes a patient is cared for in regards to any issues that may occur related to their intestinal rehabilitation or transplant by their intestinal team and will receive care from their team in some capacity for the rest of their lives.

Lastly, the patient is encouraged to consider their situation, level of illness, individual diagnosis, and find the best center for their personalized plan of care.




What questions should you consider asking your transplant team and center? (No answers)


  • Do I have choices other than transplantation?
  • What are the benefits and risks of transplantation?
  • What does the evaluation process include?
  • Can I register on the waiting list at more than one center?
  • Who are the members of the transplant team?
  • How many surgeons are available here to do my type of transplant?
  • Is there a special hospital unit or floor for transplant patients?
  • May I tour the transplant center’s units?
  • Will I be asked to take part in research studies?
  • How many of these types of transplants does this hospital or surgeon perform each year?
  • How long have you been doing these transplants?
  • What are the organ and patient survival rates for my type of transplant at this hospital and how does that compare to other hospitals?
  • Does the hospital perform living donor transplants?
  • Is a living donor transplant a choice in my case? If so, where will the living donor evaluation be done? What is the living donation process?
  • Can I meet other transplant recipients?
  • How long will I have to stay in the hospital after the transplant?
  • What sort of appointments or tests will I have after the transplant?
Would you like these in a format to take with you to your first appointment? Sign-Up or Log-In to access our Pediatric and Adult Transplant Appointment Checklist and Questions Handout.




Where can you find additional data and statistics about transplant centers in the US?


  • Visit OPTN for data reports on the national, regional, local, and center level. There are reports for the number of transplants and waiting list size, amongst many other parameters.
  • Visit SRTR for median wait time and survival rates by transplant center as well as other and data reports.




What questions should you consider asking your transplant team and center? (With sample answers)


  • What are the benefits and risks of transplantation? This will be explained to you during informed consent. Learn about the entire informed consent process and transplant evaluation here for adults and for a pediatric patient here.
  • What does the evaluation process include? Learn about the transplant evaluation here for adults and for a pediatric patient here. It may differ center by center, but this provides a basic outline.
  • Can I register on the waiting list at more than one center? Yes, as long as both centers agree. This is called multiple listing.
  • Who are the members of the transplant team? Individualized based on center.
  • How many surgeons are available here to do my type of transplant? Individualized based on center.
  • Is there a special hospital unit or floor for transplant patients? Individualized based on center.
  • May I tour the transplant center’s units? Individualized based on center. Ask your social worker, child life department, or transplant coordinator.
  • Will I be asked to take part in research studies? Individualized based on center.
  • How many of these types of transplants does this hospital or surgeon perform each year? Individualized based on center.
  • How long have you been doing these transplants? Individualized based on center.
  • What are the organ and patient survival rates for my type of transplant at this hospital and how does that compare to other hospitals? Individualized based on center. You can look up this information on your own by reviewing the SRTR reports.
  • Does the hospital perform living donor transplants? Currently the only US transplant center that performs living intestinal transplants is the University of Illinois.
  • Is a living donor transplant a choice in my case? If so, where will the living donor evaluation be done? What is the living donation process? See above.
  • Can I meet other transplant recipients? Meeting in person may vary by center and most likely will be difficult in this new world of COVID-19.
  • How long will I have to stay in the hospital after the transplant? Individualized based on center and patient. Individualized based on center and patient. From personal experience and general knowledge, on average, expect to spend at least a minimum of 2-4 weeks in the hospital after an intestinal transplant.
  • What sort of appointments or tests will I have after the transplant? Individualized by center. Take a look at our post-transplant responsibilities page for adults or pediatrics to get an idea of what to expect.





Section 2: Intestinal Rehabilitation and Transplantation Center Links

Intestinal Rehabilitation and Transplantation Centers in the United States


Ann & Robert H. Lurie Children’s Hospital of Chicago Boston Children’s Hospital Cincinnati Children's Intestinal Care Center (CCICC) Cleveland Clinic Duke University Hospital Henry Ford Hospital Indiana University Hospital Jackson Memorial Hospital Miami Lucile Salter Packard Children’s Hospital at Standford Medstar-Georgetown University Hospital Mount Sinai Healthcare Nebraska Medical Center New York Presbyterian Hospital/ Columbia University Medical Center Seattle Children’s Hospital University of California Los Angeles (Ronald Reagan UCLA Medical Center) University of Illinois (UI) Hospital (only living donor intestinal transplant in the US) University of Pittsburgh Medical Center (UPMC) UPMC Children’s Hospital of Pittsburgh ​​ Transplant Unwrapped is not recommending the transplant centers listed and cannot be held responsible for any treatment you may receive there. This list is for informational purposes only and does not imply that any center not listed is inferior.




Pediatric Intestinal Rehabilitation Centers


In addition to the centers listed above, here is a list of pediatric intestinal rehabilitation centers: All Children's Hospital Johns Hopkins Intestinal Rehabilitation Program Broward Health (Florida) Intestinal Rehabilitation Program Children's of Alabama Intestinal Rehabilitation Program Children's Hospital Colorado Intestinal Rehabilitation Program Children's Hospital of Orange County (CHOC) Intestinal Rehabilitation Program Children's Hospital fo Los Angeles Intestinal Rehabilitation Program Children's Mercy Kansas City Children's National Intestinal Rehabilitation Program Children's Health North Texas Intestinal Rehabilitation Program Children's Hospital of Philadelphia Intestinal Rehabilitation Program Columbia Intestinal Rehabilitation Program John R. Oishei Children's Hospital Intestinal Rehabilitation Program Masonic Children's Hospital Intestinal Rehabilitation Program Monroe Carell Jr. Children's Hospital Intestinal Rehabilitation Program Mott Children's Hospital Intestinal Rehabilitation Program Nationwide Children's Intestinal Rehabilitation Center Rady Children's Hospital San Diego Intestinal Rehabilitation Program Riley Children's Health Intestinal Rehabilitation Program SSM Health Cardinal Glennon Intestinal Rehabilitation Program Texas Children's Intestinal Rehabilitation Clinic UCSF Benioff Children's Intestinal Rehabilitation Program





Section 3: Additional Resources

Helpful Downloads from Transplant Unwrapped


Sign-Up or Log-In to Access: 1. Adult Transplant Appointment Checklist and Questions 2. Pediatric Transplant Appointment Checklist and Questions




Helpful Website: Organ Procurement Transplantation Network (OPTN)


Organ Procurement Transplantation Network (OPTN): The OPTN's secure transplant information database contains all national data on the candidate waiting list, organ donation and matching, and transplantation.





Intestinal Rehabilitation and Transplantation Centers (see above for links)

Ann & Robert H. Lurie Children’s Hospital of Chicago

Boston Children’s Hospital 

Cincinnati Children's Intestinal Care Center (CCICC)

Cleveland Clinic

Duke University Hospital

Henry Ford Hospital

Indiana University Hospital

Jackson Memorial Hospital Miami 

Lucile Salter Packard Children’s Hospital at Standford

Medstar-Georgetown University Hospital 

Mount Sinai Healthcare

Nebraska Medical Center

New York Presbyterian Hospital/ Columbia University Medical Center

Seattle Children’s Hospital

University of California Los Angeles (Ronald Reagan UCLA Medical Center)

University of Illinois (UI) Hospital  

(only living donor intestinal transplant in the US)

University of Pittsburgh Medical Center (UPMC)

UPMC Children’s Hospital of Pittsburgh

Pediatric Intestinal Rehabilitation Centers (see above for links)

All Children's Hospital Johns Hopkins Intestinal Rehabilitation Program

 

Broward Health (Florida) Intestinal Rehabilitation Program

 

Children's of Alabama Intestinal Rehabilitation Program

 

Children's Hospital Colorado Intestinal Rehabilitation Program

 

Children's Hospital of Orange County (CHOC) Intestinal Rehabilitation Program

 

Children's Hospital fo Los Angeles Intestinal Rehabilitation Program

 

Children's Mercy Kansas City

 

Children's National Intestinal Rehabilitation Program

 

Children's Health North Texas Intestinal Rehabilitation Program

 

Children's Hospital of Philadelphia Intestinal Rehabilitation Program

 

Columbia Intestinal Rehabilitation Program

John R. Oishei Children's Hospital Intestinal Rehabilitation Program

 

Masonic Children's Hospital Intestinal Rehabilitation Program

 

Monroe Carell Jr. Children's Hospital Intestinal Rehabilitation Program

 

Mott Children's Hospital Intestinal Rehabilitation Program

 

Nationwide Children's Intestinal Rehabilitation Center

 

Rady Children's Hospital-San Diego Intestinal Rehabilitation Program

 

Riley Children's Health Intestinal Rehabilitation Program

 

SSM Health Cardinal Glennon Intestinal Rehabilitation Program

 

Texas Children's Intestinal Rehabilitation Clinic

 

UCSF Benioff Children's Intestinal Rehabilitation Program