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 Patient and Caregiver

Reflection Videos

Overview

These are videos from patients and caregivers answering questions and sharing experiences regarding their intestinal journey.  

Q & A Post-Transplant Reflections- Julie


In this video Julie answers questions and reflects on her multivisceral transplant journey. It is important to note that this is her specific experience. Each center and each patient will have their own unique set of circumstances, criteria and experience.

We hope this video helps to shed light on the process and gives you an idea of some of the potential experiences of transplant.

In the video the following questions are addressed:

  • What was the hardest complication you faced post-transplant?
  • What is a side effect of a medication that you experienced post-transplant?
  • What information do you wish you had before transplant?
  • What advice would you give a person just starting transplant evaluation?
For more information on these topics, visit: 1. Post-Transplant Complications 2. Post-Transplant Medications If you prefer to read the answers, download the Transplant Reflections Q & A Video transcript.




Q & A Post-Transplant Reflections- Melissa


In this video Melissa answers questions and reflects on her multiple transplant journey. It is important to note that this is her specific experience. Each center and each patient will have their own unique set of circumstances, criteria, and experience.

We hope this video helps to shed light on the process and gives you an idea of some of the potential experiences of transplant.

In the video the following questions are addressed:

  • Who are you? Why did you need a transplant? What transplant did you receive and when was it?
  • Do you feel your overall transplant was a success?
  • What was the hardest complication you faced post-transplant?
  • What is a side effect of a medication that you experienced post-transplant?
  • What information do you wish you had before transplant?
  • What advice would you give a person just starting transplant evaluation?
For more information on these topics, visit: 1. Post-Transplant Complications 2. Post-Transplant Medications If you prefer to read the answers, download the Transplant Reflections Q & A Video transcript.




Q & A Post-Transplant Reflections- Jamie


In this video, Jamie answers questions about her experience with intestinal transplant. These are all good things to be familiar with when starting to understand the process of intestinal transplant and also when being listed for transplant.

We hope this video helps to shed light on key parts of the process.

In the video the following questions are addressed:

  • What was the hardest adjustment you had to make post-transplant?
  • What advice would you give a person just starting the transplant evaluation process?
  • What is something that surprised you most about intestinal transplant?
Helpful Resources:

1. Other Patient Stories

2. Transplant Unwrapped Support Programs

3. Join Our Facebook Support Group

View the video transcript.




Q & A Post-Transplant Reflections- Marea


In this video, Marea answers questions about her experience with intestinal transplant. These are all good things to be familiar with when starting to understand the process of intestinal transplant and also when being listed for transplant.

We hope this video helps to shed light on key parts of the process.

In the video the following questions are addressed:

  • What was the hardest adjustment you had to make after transplant?

  • What advice would you give a person just starting the transplant evaluation process?

  • What is something that surprised you most about intestinal transplant

Helpful Resources:

1. Other Patient Stories

2. Transplant Unwrapped Support Programs

3. Join Our Facebook Support Group

View the video transcript.




Q & A Post-Transplant Reflections- Scott


In this video Scott answers questions about his experience being a caregiver to a transplant recipient. These are all good things to be familiar with when starting to understand the process of intestinal transplant and also when being listed for transplant for caregivers and patients alike.

We hope this video helps to shed light on key parts of the process.

In the video the following questions are addressed:

  • After transplant did she have any complications? If so, what was the hardest to manage?
  • Was there a piece of information you know now that you wish you would have known before transplant?
  • Why do you feel an intestinal transplant patient requires a full time caregiver?
  • What do you find to be one of the hardest things in taking care of an intestinal transplant patient?
  • As a caregiver how did you cope with the stress?
  • What was the hardest thing about waiting for the transplant?
  • What tips can you give to other caregivers about being a strong patient advocate for your loved one?
  • What were ways you stayed organized for appointments, medications, etc…?
  • For financing the transplant, did you do any fundraising?
To read this interview, download the transcript.




Q & A Post-Transplant Reflections- Barbara


In this video Barbara answers questions about her experience post-transplantation. These are all good things to be familiar with when starting to understand the process of intestinal transplant and also when being listed for transplant.

We hope this video helps to shed light on key parts of the process.

In the video the following questions are addressed:

  • Do you feel your overall transplant was a success?
  • What was the hardest complication you faced after transplant?
  • What is an odd side effect of a medication that you experienced?
  • What information do you wish you had known before your transplant?
  • What advice would you give to a person just starting the transplant evaluation process?
To read this interview, download the transcript.





Video Transcripts and Additional Information