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Intestinal Patient

Q & A Videos

Overview

These are videos from patients and caregivers answering questions on the main steps of the intestinal and multivisceral transplant process.

Part One: Transplant Basics


In the first video below, Julie answers questions about the fundamentals of organ donation. These are all good things to be familiar with when starting to understand the process of intestinal transplant. We hope this video helps to shed light on key parts of the process. In the video the following questions are addressed:

  • What is UNOS?
  • What organs can be donated?
  • What factors are considered for organ matching for the intestine?
  • When was the first successful intestinal transplant performed?
  • How many intestinal transplants are performed every year?
  • What medication changed the feasibility of intestinal transplants in 1990?
For more information on the topics, consider visiting these pages of our website: 1. Organ Donation and Allocation 2. Organ Donation FAQs 3. History of Intestinal Transplant If you prefer to read the answers, download the Transplant Q & A Video Basics transcript.




Part Four: The Waitlist and Getting the Call


In this video Kayla answers questions and reflects on waiting for transplant. It is important to note that this is her specific experience. Each center and each patient will have their own unique set of circumstances, criteria, and experience.

We hope this video helps to shed light on the process and gives you an idea of some of the potential experiences of transplant.

In the video the following questions are addressed:

  • How long will I wait for an intestinal transplant?
  • Well will the call come?
  • What happens when you receive the call?
  • What happens when I get to my hospital for transplant?
Additional Resources: 1. The Waitlist 2. Getting the Call If you prefer to read Kayla's responses, please view the video transcript here.




Part Two: Intestinal Failure and Indications for Transplant


In this video Bethany answers questions about the reason for getting an intestinal transplant. It is important to note that this is her specific experience. Each center and each patient will have their own unique set of circumstances, criteria and experience.

We hope this video helps to shed light on the process and gives you an idea of some of the potential experiences of transplant.

In the video the following questions are addressed:

  • What is intestinal failure?
  • What common causes of intestinal failure?
  • What are the approved indications for intestinal transplant?
  • What are the four types of intestinal transplant?

For more about these topics go to the following links:

1. Indications for Intestinal Transplant

2. Transplant Patient Stories

If you prefer to read Bethany's interview, please refer to this document.




Part Five: Transplant Surgery Stay


In this video, Marea answers questions about her experience post-transplant surgery. These are all good things to be familiar with when starting to understand the process of intestinal transplant and also when being listed for transplant.

We hope this video helps to shed light on key parts of the process.

In the video the following questions are addressed:

  • What should I expect when I wake up from an intestinal transplant?

  • What is an ileostomy and why will I have one post-transplant?

  • What is an ileoscopy?

  • How long will I be in the hospital post-transplant?

  • Why is it important to get up and walk after an intestinal transplant?

Helpful Resources:

1. Post-Transplant Responsibilities

2. Other Patient Stories

3. Transplant Unwrapped Support Programs

4. Join Our Facebook Group

View the video transcript.




Part Six: Post-Transplant Complications


In this video Jamie answers questions about the fundamentals post-transplant. These are all good things to be familiar with when starting to understand the process of intestinal transplant and also when being listed for transplant.

We hope this video helps to shed light on key parts of the process.

In the video the following questions are addressed:

  • What are common complications after an intestinal transplant?
  • What is rejection?
  • What is an immunosuppressant medication?
  • What are the common immunosuppressants after an intestinal transplant?
  • What is a prophylactic medication?
For more information, consider visiting our pages: 1. Post-Transplant Complications. 2. Post-Transplant Medications 3. Join our Patient and Caregiver Facebook Support Group Read the transcript of the video here.




Part Seven: Discharge


In this video Jamie answers questions about the steps towards going home after transplant. These are all good things to be familiar with when starting to understand the process of intestinal transplant and also when being listed for transplant.

We hope this video helps to shed light on key parts of the process.

In the video the following questions are addressed:

  • How soon will I be able to eat after intestinal transplant?
  • Will I be able to get off of TPN post-transplant?
  • How will the team prepare me for discharge?
  • When I go home, what will I have to do to take care of myself?
For more information, consider going to the following pages: 1. Post-Transplant Responsibilities 2. Sign-Up as a Member and Download Many Helpful Handouts, including a Vital Signs Log 3. Join Our Patient and Caregiver Facebook Support Group Read the video transcript here.




Part Eight: Transplant Advice


In this video, Jamie answers questions about her experience with intestinal transplant. These are all good things to be familiar with when starting to understand the process of intestinal transplant and also when being listed for transplant.

We hope this video helps to shed light on key parts of the process.

In the video the following questions are addressed:

  • What was the hardest adjustment you had to make post-transplant?
  • What advice would you give a person just starting the transplant evaluation process?
  • What is something that surprised you most about intestinal transplant?
You can view other patient reflections on transplant in our Patient Reflection Section. VIew the video transcript.




Part Nine: Life after Intestinal Transplant


In this video Julie answers questions about life considerations after transplant. We hope this video helps to shed light on key areas.

In the video the following questions are addressed:

  • What is the most common post-transplant cancer?
  • What are important considerations to take with food after transplant?
  • What types of activities should be avoided after an intestinal transplant?
  • Am I able to have a pet after transplant?
For more information, consider going to the following pages: 1. Life After Transplant 2. Transplant Unwrapped Facebook Support Group 3. Webinars: A variety of topics, including information about life after transplant.




Special Edition: Living with Short Bowel Syndrome while on Total Parenteral Nutrition (TPN).


In this video Swapna answers questions about living with Short Bowel Syndrome (SBS) since birth and being on Total Parenteral Nutrition (TPN). It is important to note that this is her specific experience. Each center and each patient will have their own unique set of circumstances, criteria and experience.

We hope this video helps to shed light on the process and gives you an idea of some of the potential experiences of living with Short Bowel Syndrome and receiving nutrition through TPN.

In the video the following questions are addressed:

  • What gut rehabilitation interventions did you have done prior to transplant?
  • Have you ever been a participant in a clinical trial?
  • Why did you receive a small bowel transplant?
  • When did you assume responsibility for the management of your TPN?
  • When on TPN were you able to eat food?
Helpful Links: 1. Short Bowel Syndrome for Adults 2. Short Bowel Syndrome for Pediatrics 3. Indications for Intestinal Transplant If you would like to read the transcript of this patient Q & A, please see this document.




Part Three: Intestinal Transplant Evaluation


In this video Bethany answers questions about the transplant evaluation process. It is important to note that this is her specific experience. Each center and each patient will have their own unique set of circumstances, criteria and experience.

We hope this video helps to shed light on the process and gives you an idea of some of the potential experiences of transplant.

In the video the following questions are addressed:

  • How do I get referred for an intestinal transplant?
  • What is a transplant evaluation?
  • What transplant team members will I see during the evaluation process?
  • What tests might I have to undergo during transplant evaluation?
  • What happens after the transplant evaluation?
For more information, you can visit our page on evaluation. To read the transcript, view this document.





Video Transcripts and Additional Information