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Community Perspectives:
A collection of tips, thoughts and practical advice from our community members

Winter 2026:

 

In celebration of Intestinal Failure Awareness Day, we asked members in our Support Groups to tell us how having Intestinal Failure affects them. ? ​

Spring 2026:

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 What do you think your medical team would be suprised to learn about the realities of  being a Caregiver? 

Fall 2025:

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How do you have the most effective communication with your team, especially while inpatient or sick?

Winter 2025:

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What are the best gifts that friends and family can give you, especially when things are difficult?

Winter 2024:

 

How do you enjoy holiday and holiday times that seem focused on food if you can't eat or food causes issues for you? How do you model healthy habits to children if you cannot eat? ​

Spring 2025:

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 What are your best tips on advocating for yourself and helping others who love us to advocate when you can not?

Summer 2024:

 

 

What are the most helpful things you do to stay hydrated in the summer months?

Fall 2024:

 

 

What are your best Ostomy hacks or tips? Please note that products named are ones that members use and prefer and should not be noted as endorsed by IRTxU. ​​

Winter 2023:

 

How do you handle family members who do not understand your or your loved ones illness over the holiday season? 

Spring 2024:

 

What are the most helpful things you bring with you to the hospital? 

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