Supporting and educating patients and families on the intestinal failure,
intestinal rehabilitation and intestinal and multivisceral transplantation journey.
Welcome to the
Patient and Caregiver Section!
Overview
Every patient and caregiver experiences a unique path when navigating the world of intestinal dysfunction. The Transplant Unwrapped patient and caregiver section provides educational and support resources for patients and their loved ones wherever they may be on their journey, from initial diagnosis of an intestinal condition to treatment with intestinal rehabilitation or transplantation.
Basic Definitions
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Short Bowel Syndrome (SBS):
This is when the body doesn’t absorb enough fluids and nutrients because part of the small intestine is missing, or isn’t working right.
Intestinal Failure: This develops when your small intestine does not provide the necessary long term nutrition needed to sustain a normal life.
Intestinal Rehabilitation:
This is the process of restoring nutritional autonomy in patients with Short Bowel Syndrome (SBS) and intestinal failure. The goal: wean from parenteral and enteral (tube feeds) nutrition.
Intestinal and Multivisceral Transplant:
This is the surgical procedure to replace a diseased or shortened small bowel with a healthy bowel from a donor. A multivisceral transplant includes additional organs.
In This Section You Will Find:
For Those At The Beginning of the Journey:
Short Bowel Syndrome (SBS) and Intestinal Failure
Learn more about the causes, signs and symptoms, complications, and possible treatment options for Short Bowel Syndrome (SBS), GI Disorders, and intestinal failure.
Learn more about intestinal rehabilitation, which includes changes in diet, fluids, medications, and surgical procedures.
For Those Exploring Intestinal and Multivisceral Transplantation:
Step One: Indications for Transplant
Learn why an individual may need an intestinal or multivisceral transplant.
Learn about the transplant evaluation process.
Other Useful Information For Patients and Caregivers:
A listing of websites on a variety of topics, including intestinal conditions, financial assistance, transplant, and more.
Visit our support programs page to find various ways to connect with other patients and caregivers.
Read stories from patients, caregivers, and other members of the community.
Find handbooks and other downloads on a variety of topics related to intestinal failure, rehab, and transplant.