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Welcome to the

Pediatric Section!

Overview

Every child experiences a unique path with intestinal dysfunction. The Transplant Unwrapped pediatric section provides educational and support resources for caregivers of pediatric patients wherever they may be on their journey, from the initial diagnosis of an intestinal condition to treatment with intestinal rehabilitation or transplantation. For additional resources and a kid-friendly site, check back soon for the launch of Transplant Unwrapped Kids!  

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Short Bowel Syndrome (SBS): 

This is when the body doesn’t absorb enough fluids and nutrients because part of the small intestine is missing, or isn’t working right.

Basic Definitions

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Intestinal Failure: This develops when your child's small intestine does not provide the necessary long term nutrition needed to sustain a normal life.

Intestinal Rehabilitation: 

This is the process of restoring nutritional autonomy for a child with Short Bowel Syndrome (SBS) and intestinal failure. The goal: wean from parenteral and enteral (tube feeds) nutrition.

Intestinal and Multivisceral Transplant:

This is the surgical procedure to replace a diseased or shortened small bowel with a healthy bowel from a donor. A multivisceral transplant includes additional organs. 

In This Section You Will Find:

For Pediatric Caregivers At The Beginning of the Journey:

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Short Bowel Syndrome (SBS) and Intestinal Failure

Learn more about the causes, signs and symptoms, complications, and possible treatment options for Short Bowel Syndrome (SBS), GI Disorders, and intestinal failure. 

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Intestinal Rehabilitation

Learn more about intestinal rehabilitation, which includes changes in diet, fluids, medications, and surgical procedures.

For Pediatric Caregivers Exploring Intestinal and Multivisceral Transplantation:

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Step One: Indications for Transplant

Learn why your child may need an intestinal or multivisceral transplant.

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Step Two: Evaluation

Learn about the transplant evaluation process.

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Step Six: Life After Transplant

Note: This page is not pediatric-specific.

Other Useful Information:

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Helpful Websites

A listing of websites on a variety of topics for pediatric patients. To view our adult listing you can go here.

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Support Programs

Visit our support programs page to find various ways to connect with other patients and caregivers.

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Stories

Read stories from patients, caregivers, and other members of the community.

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Handbooks

Find handbooks and other downloads on a variety of topics related to intestinal failure, rehab, and transplant.

Do you have something to contribute?

We are always looking for patients, caregivers, and community members to volunteer time and skills in a variety of ways to continue to fulfill our mission. 

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New Resources

Help us continue to support and educate the intestinal community!

As an official 501(c)(3) all donations are tax-deductible. EIN: 85-0748376.