Stories, Interviews, and Personal Experiences
Hear, Read, and Watch Inspiring Stories and Interviews From Various Members of the Intestinal Community.
In this section you will find a variety of stories, interviews, and educational topics told by patients, caregivers, clinicians, and other members of the intestinal community. Every person has a unique experience and journey with valuable knowledge to share. We invite you to explore this section, learn, and make connections. You are not alone.
Patients, caregivers, and other members of the community share their story's.
Education Through Storytelling
Coming early 2021, Patients, caregivers, and other members of the community combine educational topics with personal experience stories in short audio clips you can listen to on-the-go.
Patients, caregivers, and other community members provide answers to FAQs on short bowel, intestinal rehab, and intestinal transplant.
Watch past live events and pre-recorded webinars from both clinicians and patients on a variety of topics.
Patients, caregivers, and other members share their experiences with intestinal rehab, transplant, and other related topics.
Clinicians from the intestinal rehabilitation and transplantation community share valuable information on various topics.
AVN may be painful and limiting, but it doesn’t mean that you have to sit around all day and do nothing. Embrace your new normal and find new ways to do the things you love!
The best way I can describe the experience is to say it was like ice skating flawlessly, and then falling hard on your behind! It was an abrupt and jarring experience. But then we got up, dusted ourselves off, and went back to the routine of appointments and meetings.
Intestinal Transplant Caregiver
Cautiously optimistic became my phrase for how I felt. Understanding that there would be good and not good outcomes for my loved one helped and continues to help us live our best lives.