Guidelines and Code of Conduct

 

The purpose of Transplant Unwrapped is to educate and support the community about intestinal failure,  intestinal rehabilitation, and intestinal and multivisceral transplant: educate to help improve the lives of our members and their families; educate the community-at-large, to foster awareness and a better understanding of this patient and caregiver population; and educate to encourage compassionate care and treatment of intestinal failure, intestinal rehabilitation, and multivisceral transplant patients.

 

Transplant Unwrapped has developed a Code of Conduct for all Transplant Unwrapped Members. By joining our Support Programs and adopting the Code of Conduct, members agree to represent themselves, the Transplant Unwrapped organization, and intestinal rehabilitation and intestinal and multivisceral transplantation in a positive and constructive manner.

 

Code of Conduct

 

I agree to support other intestinal rehabilitation and transplant patients and caregivers via our private Internet Forum.

 

I agree to be respectful of all users at all times. This means please use etiquette and politeness. Treat people with kindness and gentleness.

 

I agree to promote positive awareness, education, care, and support for the intestinal failure, intestinal rehabilitation, and intestinal and multivisceral transplantation community.

 

I agree to refrain from using the board to send abusive or harassing private messages or emails.

 

I agree to remember that these support programs are used by people of all ages, so we strive to maintain postings appropriate to everyone.

 

I agree to report to a moderator or administrator privately if you have found a post that you feel is inappropriate or that violates the forum Code of Conduct. While the administrators and moderators of these programss will attempt to remove or edit any objectionable material as quickly as possible, it is impossible to review every message, so we appreciate your assistance. 

 

I agree to be aware of negativity and misinformation that can exist on other social websites, groups, and forums and to avoid promoting, participating in, associating with, or adopting such harmful attitudes myself.

 

I agree to provide Transplant Unwrapped with only accurate information regarding myself, my identity, and my activities.

 

I agree to abide by the policies and guidelines that may from time to time be newly adopted by the Transplant Unwrapped Board of Directors.

 

I agree to not speak against other Ambassadors, the organization, the moderators, or the leadership.

 

I agree to graciously and respectfully discourage others who may engage in negative gossip because I recognize that this issue alone can jeopardize the integrity on which the organization is established and fosters an eroding effect on the overall health of the entire organization.

 

I UNDERSTAND that the Transplant Unwrapped organization reserves the right to remove a member if in the judgment of the Board of Directors such action is deemed necessary to safeguard standards of behavior, attitude, and safety.

 

I UNDERSTAND that as a participant of the support programs, I am a representative of the intestinal failure, intestinal rehabilitation, and intestinal and multivisceral transplantation and the Transplant Unwrapped organization and am therefore obligated to present myself, these transplants, and this organization in a positive, healthy, and constructive manner.

 

All members admitted to the support programs must agree to uphold this Code of Conduct and the policies of the Transplant Unwrapped organization. These policies are not implemented to be self-serving or controlling in nature, but rather they exist to better serve the members and to ensure that participation is a fulfilling experience.

 

Transplant Unwrapped’s Facebook Support Group Participation and Posting Guidelines:

 

In General,

• Transplant Unwrapped reserves the right to remove messages, block users after a warning, and update policy without notice. The following posts and/or replies are subject to removal and the responsible user(s) being blocked from the discussion board: inflammatory; derogatory; controversial; religious; political; off-topic; profanity; posting another user's e-mail address (without that person's permission); questions/debate about board policy/management; personal attacks/harassment; boycott campaigns.

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• Sanctions are as follows:

  • First Offense: Removal of comment and warning issued. Any comment that, in the view of the moderator, breaches the Transplant Unwrapped Code of Conduct will be removed and a warning will be issued to the individual who posted the topic or comment.

  • Second Offense: Temporary Suspension. A participant who repeatedly and flagrantly flouts the moderation rules may be suspended from access to the discussion forum and website for a period of up to one week. The period will reflect both the severity and consistency of the breach.

  • Third Offense: Permanent Blocking. A participant who continues to violate the moderation rules following reinstatement after a period of suspension may have their access to the website permanently blocked.

  • No Warning Offense: Automatic Blocking: A participant who posts or links to inappropriate, offensive or illegal material will be immediately blocked from the site, no questions asked.

 

• Commercial posting is strictly prohibited. This means that messages promoting a product or service must not be posted by, or on behalf of, anyone with any sort of financial interest in that product or service.

 

• Solicitations to participate in market research by commercial enterprises is prohibited unless approved by Transplant Unwrapped and disclosed to members.

 

• Solicitations to participate in research studies by non-profit entities must also be cleared by the Transplant Unwrapped Management Board of Directors before being posted on this board.

 

• Copyrighted material must not be included in postings, but you may provide a link to the original source.

 

• This is a family board. Any language or pictures that would not be suitable for a family audience are prohibited. You are not to post any abusive, obscene, vulgar, sexually-oriented material, or anything that may violate any applicable rules. This includes the posting of material that may be generally offensive to, or "flaming" of, users or management of the board. Doing so may lead to your being permanently banned.

 

• Images/videos - Although members of this group may be more sensitive towards relating to medical topics and concerns, we ask that you be considerate in the images that you post in the public forum. In order to maintain the family-friendly nature of this forum, we ask that you not post media of a graphic nature to the forum. (Pictures of stool, vomit, bleeding, unhealed surgical sites, etc.). Please remember that this forum is not a substitute for advice from a medical professional. If a photo concerns you enough to share here and be seeking advice, please share it with your doctor or another medical professional instead. Additionally, for your protection, nude photos (even if they are a medical nature) will be removed. Please edit photos appropriately before publishing them.

 

• The webmaster, administrators, and moderators of this forum have the right to remove, edit, move or close any topic at any time should they see fit, and without asking the permission of the original poster, neither do they have to give a reason for editing or closing the post/thread/topic in question.

 

• There is to be no open forum flaming of another member. No-one will post demeaning comments to one another on the open forum or they will be removed.

 

• The decisions of a post either staying, being deleted, or edited are those of the moderators/administrators.

 

• Topics started by one person should be kept on track; if you have something that deviates from the main topic, please start another topic.

 

• This board is here to serve a purpose, namely, support. Support is a broad word and sometimes crosses some of the specific rules stated. Determinations whether posts that appear to skirt some of the rules may stay on the board are those of the moderators/administrators. If you feel something is inappropriate, please contact the appropriate people instead of posting your objections on open forum.

  • If you find that a person is posting inaccurate information or inappropriate information, please ‘flag’ the comment directly on the forum as well as contact a moderator immediately so the post can be taken down if warranted- we want to make the forum a pleasant place for everyone to share information and provide support.

  • There is an automatic built-in system on the forum that will automatically take-down a post if it is ‘flagged’ a certain number of times by forum members, so even if one person has already flagged a comment, if you also think it is inappropriate, please flag it yourself so the system knows to bring attention to the item, as we cannot see every comment at every moment.

 

• If you are ever in doubt of a question or seeking true medical advice, please refer to your transplant center or proceed to your nearest emergency room- This forum and/or website is not intended to be used as medical advice or to diagnose, treat, cure, or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for a health professional's advice. Transplant Unwrapped does not accept any liability for any injury, loss, or damage incurred by use of or reliance on the information presented.

 

• Must be 18 years or older. If between the ages of 13-17 years, you must obtain parent or guardian approval to join the forum. No one under the age of 13 is allowed access to the forum for safety and privacy reasons. Please ask a parent or guardian to join the forum on your behalf. 

 

• Pharmaceuticals - Please do not offer to give or sell prescription drugs to other members of this group. It is illegal to sell or transfer prescription drugs without a license. Exchange of durable, unexpired, medical supplies/medical equipment is allowed. If members do not need the medical equipment or supply listed, please use the below sites to exchange the equipment/supplies or order samples: http://www.oley.org/equipexchange.html
  http://www.ostomy.org/Ostomy_Supply.html 

 

 

• Sharing of information outside the group - It is assumed all posts and comments in the group are to not be shared outside of the privacy of the group. Please ask the person who has posted if a post, comment, or link, is allowed to be shared outside the group. If sharing any information learned from the group with others via verbal dialogue, please do not use any identifying information. Please under no circumstances is it appropriate to share personal medical information, personal opinions, or personal views, read in the group with your clinical team.