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Welcome to the

Patient and Caregiver Section!

Overview

Every patient and caregiver experiences a unique path when navigating the world of intestinal dysfunction. The Transplant Unwrapped patient and caregiver section provides educational and support resources for patients and their loved ones wherever they may be on their journey, from initial diagnosis of an intestinal condition to treatment with intestinal rehabilitation or transplantation.  

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Basic Definitions

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Short Bowel Syndrome (SBS): 

This is when the body doesn’t absorb enough fluids and nutrients because part of the small intestine is missing, or isn’t working right.

Intestinal Failure: This develops when your small intestine does not provide the necessary long term nutrition needed to sustain a normal life.

Intestinal Rehabilitation: 

This is the process of restoring nutritional autonomy in patients with Short Bowel Syndrome (SBS) and intestinal failure. The goal: wean from parenteral and enteral (tube feeds) nutrition.

Intestinal and Multivisceral Transplant:

This is the surgical procedure to replace a diseased or shortened small bowel with a healthy bowel from a donor. A multivisceral transplant includes additional organs. 

In This Section You Will Find:

For Those At The Beginning of the Journey:

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Short Bowel Syndrome (SBS) and Intestinal Failure

Learn more about the causes, signs and symptoms, complications, and possible treatment options for Short Bowel Syndrome (SBS), GI Disorders, and intestinal failure. 

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Intestinal Rehabilitation

Learn more about intestinal rehabilitation, which includes changes in diet, fluids, medications, and surgical procedures.

Other Useful Information For Patients and Caregivers:

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Helpful Websites

A listing of websites on a variety of topics, including intestinal conditions, financial assistance, transplant, and more.

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Support Programs

Visit our support programs page to find various ways to connect with other patients and caregivers.

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Stories

Read stories from patients, caregivers, and other members of the community.

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Handbooks

Find handbooks and other downloads on a variety of topics related to intestinal failure, rehab, and transplant.

Do you have something to contribute?

We are always looking for patients, caregivers, and community members to volunteer time and skills in a variety of ways to continue to fulfill our mission. 

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New Resources

Help us continue to support and educate the intestinal community!

As an official 501(c)(3) all donations are tax-deductible. EIN: 85-0748376.