Hopefully this month brings us a little more warmth and brightness.
Here are the events we are tracking for this month:
March 8th - Transplant Unwrapped Webinar: Post Transplant Infections with Dr. Jafri from Henry Ford Health System
March 9th - World Kidney Day
March 13th - Transplant Unwrapped Caregiver Virtual Support Group
March 27th - Transplant Unwrapped Virtual Support Group
March 30th - National Doctor Day
In honor of #RareDiseaseDay, we salute the invaluable work of patient advocacy groups, whose efforts uplift and empower people living with #RareDiseases like #ShortBowelSyndrome (SBS). We’re thrilled to unveil a first-of-its kind SBS patient support resource authored by patient experts, community organization leads and healthcare professionals. Crafted in collaboration with members of the SBS community, the resource provides a summary of services and resources offered by various patient groups to help people with SBS navigate their journey and connect with those who understand and share their experiences.
This resource symbolizes a collective promise to ensure that those with SBS are not just seen, but truly understood. It’s a testament to the unwavering dedication of our community to stand united in support of one another. Ironwood Pharmaceuticals is proud to have supported and funded its development.
For Pediatric patients and their caregivers.
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We regularly hold expert led webinars for the benefit and education of our community.
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Our Medical Advisory Board has 19 members from 10 intestinal rehabilitation and transplantation centers across the nation.
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"Transplant Unwrapped and educational programs are a vital resource to the community for intestine transplant and short bowel syndrome. It is so important that patients have educational resources and ways of networking with others and be able to gain a greater understanding of their disease process, a greater understanding of the expectation of what transplant would bring, and a greater resource and ability to reach the larger community around them." ~Dr. Syed-Mohammed Jafri, Henry Ford Health Systems~